tag:blogger.com,1999:blog-6439325696191765552.post2478222981202004856..comments2021-08-18T22:30:21.570-04:00Comments on Sarcoidosis United: 9/11 victim dies from dust exposures?Unknownnoreply@blogger.comBlogger6125tag:blogger.com,1999:blog-6439325696191765552.post-58536560563192640192010-09-12T19:25:24.406-04:002010-09-12T19:25:24.406-04:00Anonymous, Becca didn't start this Blog, I did...Anonymous, Becca didn't start this Blog, I did. She was kind enough to leave a post responding to the article of 9/11 victims and dust exposure. <br /><br />Thanks for leaving a comment and BTW do you remember your Doctor's name at Mt Sinai?DRojohttps://www.blogger.com/profile/06223697252898622813noreply@blogger.comtag:blogger.com,1999:blog-6439325696191765552.post-74355172383183179482010-09-11T23:00:42.253-04:002010-09-11T23:00:42.253-04:00Becca I know it took a lot of courage for you to s...Becca I know it took a lot of courage for you to start this blog this is coming from a 35 year old woman who was dx with Sarcoidosis a little over a year ago. Since there is no official etiology but I was told that it can be caused by environmental factors including toxins in the air. I have to say that I did go to Mt. Sanai and I really was not impressed by their services at all a particular doctor there told me once that my symptoms were not due to sarcoidosis since he'd suspected that there was going to be a law suit for malpractice. The weird thing about this disease is that most doctors don't seem to know much about it. Well I've finally found a specialist who is trying his best to stabilize me. It's tough at 35 being on disability due to Sarcoidosis. I hope you're getting the proper treatment that you so well deserve.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6439325696191765552.post-9874774650026356002010-03-03T11:04:34.676-05:002010-03-03T11:04:34.676-05:00I just happened to find your blog this morning by ...I just happened to find your blog this morning by accident and I’m really glad I did. My brother died a little over two years ago due to the sarcoidosis he was told he contracted by being a volunteer at Ground Zero from 9-11 until 9-15-01. He was a lieutenant in the US Army and an ER Nurse as well. He didn’t ever think he’d die from it but it was very chronic and aggressive. I know he would have liked your blog a lot. It would have given him some hope.jennehttps://www.blogger.com/profile/17367739186328391214noreply@blogger.comtag:blogger.com,1999:blog-6439325696191765552.post-3028213961874524822009-11-27T09:41:58.052-05:002009-11-27T09:41:58.052-05:00Thanks DRojo,
I'm actually living in San Franc...Thanks DRojo,<br />I'm actually living in San Francisco now and under the care of the UCSF Interstitial Lung Disease Group. They are experts in Sarcoidosis. I forgot who my Doctor was at Mt. Sinai. SorryAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-6439325696191765552.post-62984775785471787752009-11-26T11:28:20.088-05:002009-11-26T11:28:20.088-05:00Becca, Your Humble opinion always welcomed here. S...Becca, Your Humble opinion always welcomed here. Sorry to hear about your suffering. I take it your doctor was Dr. Teirstein? Either way your in good hands at Mt. Sinai. <br /><br />Hopefully more will be learned about how the dust affected people in the coming years.DRojohttps://www.blogger.com/profile/06223697252898622813noreply@blogger.comtag:blogger.com,1999:blog-6439325696191765552.post-72200387315501681042009-11-26T10:35:55.696-05:002009-11-26T10:35:55.696-05:00I suffer from Sarcoidosis and it as caused by dust...I suffer from Sarcoidosis and it as caused by dust from the 9/11 attacks on the WTC. I was living and working in downtown NYC and I was continuously exposed to that toxic dust cloud for weeks.<br /><br />My Sarcoidosis as diagnosed via Kveim test at Mt. Sinai.<br /><br />My Sarcoidosis is really chronic and pretty aggressive attacking not just my lungs but eyes, skin and joints. Last month I was hospitalized for a week because my Sarcoidosis attacked me so bad I was going into respiratory arrest.<br /><br />So yes, I believe that person died of 9/11 caused Sarcoidosis. Just my humble opinion.<br /><br />Sincerely,<br />RebeccaAnonymousnoreply@blogger.com