So, pathology report came back and confirmed granulomas in my sinuses. After what I thought was 7 years in remission. Could be I had it all along but this week I'm experiencing the flare ups that I had back then. Mt Sinai can't see me till Nov 1st so I'm going to a local rheumatologist to see if he can start me on Predinsone until I can see them in Nov. They are also going to call me Monday to see if they can squeeze me in due to flare up. that's the game plan!
In 2007-2010 I had it in my spleen (removed) and lungs. I already had my lungs checked in Mt Sinai 2 months ago and it doesn't seem to be active there. My ENT has seen sarcoid before and is concerned that it may cross over to my brain. Not sure the validity in that but well see.
Sarcoidosis United
Sarcoidosis United