Get your TeeGee sarcoidosis awareness shirts here!

It's been awhile but The Gardener is at it again. Just wanted to let you all know shirts are still available and new hilarious ones added.

TeeGee has one of the most astute and warm sense of humor I have ever encountered and a hero in my book for doing so much to help spread awareness.

Get your shirts right here

The Gardener's Sarcoidosis Awareness Workshop

And meet Capt Sarcoidosis Awareness and find out what a Snarkie Sarckie  is.

A little bit about the Gardener. (Copied and pasted from the shirt site)

theGardener is the founder of the grassroots Snarky Sarkie© Campaign to increase world wide awareness of Sarcoidosis. theGardener is the creator of the comic strip Rabid Barking Lymph Nodes© the world's first Sarcoidosis comic. He is also the author of My Pet Demon: A Sarcoidosis Journal© featured on the Foundation for Sarcoidosis Research Stop Sarcoidosis Community web site. 

His journal, focusing on his own experiences with Sarcoidosis for over 20 years has a unique sarcastic twist and uplifting humorous tone. theGardener feels that humor is the best medicine and an effective way to convey a message and therein lies the core of the Snarky Sarkie© Sarcoidosis Awareness grassroots movement.

“ I am inspired by anyone who... in spite of tragedy or in the face of illness that is unfair and contrary, still throws a leg over the side of the bed and gets on with the business of living. That's guts and fortitude.” — theGardener

RIP Gene P. I. Duffy

It's so sad that he passed away. Sarc just kept eating away at him for so long. Gene was at the point he couldn't take prednisone because the damage from preds was feared to be worst from that of sarcoidosis itself. Although I only knew Gene through facebook and the Sila site and we didn't really communicate much. I did know that he comforted a lot of people through humor. I'm sad to see him go and will miss his facebook posts. Don't worry Gene, your daughter posted that she will take good care of Shackleton.
I know you suffered a lot Gene now it's time to rest in peace.

Prayers go out to the family...

Sarcoid free 2 years now

Haven't written much I have really been focusing on my goals and appreciating all the little things. Not sure if I'm out of the woods completely and don't really care. Not sure wether to call it remission or something else but I do know that it's important to take time to look around and smell the roses. As far as I'm concerned I fired my doctor (or so he said). I still think about it because I don't want to let myself forget.

Just thought I'd check in...

Jazz for a Cure

A benefit for Sarcoidosis Research in Columbia, Maryland Featuring Alex Brown a Jazz musician unknown to me but that's not saying much. It's great to see this and I hope there is a good turnout for this very worthy fundraiser. Jazz may even be a good thing for those suffering from sarcoidosis and it's only 25 smakeroos. Come one come all Sunday Sept 26th  between 3 and 6pm. Check out the website of the hometownannapolis for more details!


JAZZ FOR A CURE


I would love to hear from anyone who attends!

John Hopkins finds new lead that may bring us closer to a cure.

Or at least an official diagnosis...

I didn't see this article until TeeGee posted it on his Facebook I gotta say I have been out of the loop, my job has been keeping me real busy.

Many years of research finally yielded some info that might help doctors find sarcoidosis and diagnose it quicker. That's great news because as you know this disease often gets confused with others. They were able to ID a protein that might be responsible for triggering sarcoidosis. So far they know there is a link between this protein and sarcoidosis so one can say they will put them in the right direction. This took 6 years folks! It makes me feel good though, like someone "is on it".

Here is the article's link

A CENTURY-OLD PUZZLE COMES TOGETHER: SCIENTISTS ID POTENTIAL PROTEIN TRIGGER IN LUNG DISEASE SARCOIDOSIS

Great find TG thanks!

Hike for Lung Health - Team Sarcoidosis

Unfortunately this is only going on in Chicago, but you can still help by doing a virtual hike and raise money for this cause. It seems like there is an increase in sarcoidosis awareness. Can we thank Bernie and Mayweather Jr.?  Either way, I'll take it! Awareness is good folks so do what you can here is the link to the FRS site with the Hike for Lung Health Team Sarcoidosis! If you don't feel like Hiking you can always send some money because in the end that's what it's all about. Money for research so please feel free to give them some.

Have a wonderful Labor Day!

http://www.stopsarcoidosis.org/lungwalk/

Appreciate the little things

I have written in the past about how much of the little things are appreciated as a result of things in your health sucking all the time. It's gives me great pleasure though to see others with sarc taking notes on the tiny little things that are good that for most people would just discard it as normal of even worst it just goes unnoticed. I guess it take a major disease or sickness or even scare to get people to realize how precious life is sometimes. All you have to do is take a minute and look around. Yeah things are bad your breathing is shit, you can't even breath through your nose, your tired and you wonder if you can even take another step. Bloated from all the drugs can't help feeling like your not even yourself anymore and you forgot what normal felt like. I guess that is what makes it easier to notice the tiny things that make us happy and why others don't even notice.