Autoimmune Walk for a Cure

I just received a pamphlet in the mail on the annual Autoimmune Walk for a Cure. There is one in NYC for those of us in the metro area. I'm wondering if anyone is interested putting together a team to walk this thing and raise money for this cause.

Although I no longer suffer from sarcoidosis I am forever linked to autoimmune diseases where ever I happen to look.

Let's start with my brother, he has suffered from ulcerative colitis almost his whole life. I have a cousin who suffers from chrons disease. My mother-in-law (RIP) suffered from chrons. My brother-in-law (RIP) also suffered from chrons and who know how many others I may not know about.

I believe this organization is the key because it's every disease united. That means more money for research. This is one of those find a cure for one you may have them for all. Even if science can find a way to control inflammation long term without shutting down your immune system and taking steroids then at least millions of people can live a little better.

Let me know if you live in the tri state area and are interested in walking and raising money for this worthy cause

/http://www.autoimmunewalk.org/

http://www.facebook.com/AutoimmuneWalk

The Bernie Mac Foundation

I haven't been on the site for awhile but noticed they revamp and it looks great.

Bernie Mac Foundation

Love the video and the About Bernie section.

Please check it out and donate if you can.

Get your TeeGee sarcoidosis awareness shirts here!

It's been awhile but The Gardener is at it again. Just wanted to let you all know shirts are still available and new hilarious ones added.

TeeGee has one of the most astute and warm sense of humor I have ever encountered and a hero in my book for doing so much to help spread awareness.

Get your shirts right here

The Gardener's Sarcoidosis Awareness Workshop

And meet Capt Sarcoidosis Awareness and find out what a Snarkie Sarckie  is.

A little bit about the Gardener. (Copied and pasted from the shirt site)

theGardener is the founder of the grassroots Snarky Sarkie© Campaign to increase world wide awareness of Sarcoidosis. theGardener is the creator of the comic strip Rabid Barking Lymph Nodes© the world's first Sarcoidosis comic. He is also the author of My Pet Demon: A Sarcoidosis Journal© featured on the Foundation for Sarcoidosis Research Stop Sarcoidosis Community web site. 

His journal, focusing on his own experiences with Sarcoidosis for over 20 years has a unique sarcastic twist and uplifting humorous tone. theGardener feels that humor is the best medicine and an effective way to convey a message and therein lies the core of the Snarky Sarkie© Sarcoidosis Awareness grassroots movement.

“ I am inspired by anyone who... in spite of tragedy or in the face of illness that is unfair and contrary, still throws a leg over the side of the bed and gets on with the business of living. That's guts and fortitude.” — theGardener

RIP Gene P. I. Duffy

It's so sad that he passed away. Sarc just kept eating away at him for so long. Gene was at the point he couldn't take prednisone because the damage from preds was feared to be worst from that of sarcoidosis itself. Although I only knew Gene through facebook and the Sila site and we didn't really communicate much. I did know that he comforted a lot of people through humor. I'm sad to see him go and will miss his facebook posts. Don't worry Gene, your daughter posted that she will take good care of Shackleton.
I know you suffered a lot Gene now it's time to rest in peace.

Prayers go out to the family...

Sarcoid free 2 years now

Haven't written much I have really been focusing on my goals and appreciating all the little things. Not sure if I'm out of the woods completely and don't really care. Not sure wether to call it remission or something else but I do know that it's important to take time to look around and smell the roses. As far as I'm concerned I fired my doctor (or so he said). I still think about it because I don't want to let myself forget.

Just thought I'd check in...

Jazz for a Cure

A benefit for Sarcoidosis Research in Columbia, Maryland Featuring Alex Brown a Jazz musician unknown to me but that's not saying much. It's great to see this and I hope there is a good turnout for this very worthy fundraiser. Jazz may even be a good thing for those suffering from sarcoidosis and it's only 25 smakeroos. Come one come all Sunday Sept 26th  between 3 and 6pm. Check out the website of the hometownannapolis for more details!


JAZZ FOR A CURE


I would love to hear from anyone who attends!

John Hopkins finds new lead that may bring us closer to a cure.

Or at least an official diagnosis...

I didn't see this article until TeeGee posted it on his Facebook I gotta say I have been out of the loop, my job has been keeping me real busy.

Many years of research finally yielded some info that might help doctors find sarcoidosis and diagnose it quicker. That's great news because as you know this disease often gets confused with others. They were able to ID a protein that might be responsible for triggering sarcoidosis. So far they know there is a link between this protein and sarcoidosis so one can say they will put them in the right direction. This took 6 years folks! It makes me feel good though, like someone "is on it".

Here is the article's link

A CENTURY-OLD PUZZLE COMES TOGETHER: SCIENTISTS ID POTENTIAL PROTEIN TRIGGER IN LUNG DISEASE SARCOIDOSIS

Great find TG thanks!