Tuesday, November 10, 2009

NYC Judge Dies from complications of sarcoidosis (Lungs)

An article like this only supports what I believe, that there is a lot more among us than we think. Who knows how long he was dealing with this disease. He passed away at 74.

New York Times article on  Charles P. Sifton


I also copied and paste the article below fearing it might not be available later.


The New York Times


 November 10, 2009

Charles P. Sifton, Judge in City Case on Term Limits, Dies at 74

Charles P. Sifton, a federal judge in Brooklyn whose rulings paved the way for women to join the New York Fire Department and for Mayor Michael R. Bloomberg to run for a third term, died Monday at his home in Brooklyn. He was 74.
The cause was complications of sarcoidosis, a lung disease, his son Sam said.
Judge Sifton handled many major cases in more than 30 years on the bench, many of them as chief judge of the United States District Court for the Eastern District of New York.
He presided over civil-rights and school desegregation cases as well as trials of Mafia chieftains, Irish terrorists and Joseph M. Margiotta, the Nassau County Republican leader convicted in 1983 of mail fraud.
The judge’s term-limit ruling, in January, stands out for its impact on recent New York City politics, with the mayor’s re-election last week.
Judge Sifton’s decision upheld a law passed last fall by the City Council to allow incumbents to run for a third term. The Council had followed the wishes of the mayor and some of its members in overturning a two-term limit endorsed by voters in two referendums in the 1990s.
Judge Sifton rejected arguments by Comptroller William C. Thompson Jr., who became the Democratic mayoral candidate, and others who filed suit to reverse the Council’s action. They contended that only another referendum could overturn the limit and that voters’ constitutional rights to free speech and due process had been violated.
Judge Sifton ruled that officials elected by voters are entitled to reverse direct referendums.
“To hold that overturning a law enacted by referendum infringed on First Amendment rights would effectively bar repeal, amendment or revision of all laws initiated by the people,” he wrote in his 64-page opinion.
In 1982, Judge Sifton ruled that a Fire Department test of physical strength and speed discriminated against women. He ordered that a new test be developed and that 45 women who had sued the city be hired. The women had to pass an interim test that emphasized agility and stamina over strength and speed.
Judge Sifton also ordered that a new, nondiscriminatory test be prepared. The city appealed the order to the United States Court of Appeals for the Second Circuit. That court approved the new test, and in 1987 the United States Supreme Court refused to hear arguments on the appeals court’s decisions, allowing the test developed under Judge Sifton’s order to take effect.
In 1992, a decision by Judge Sifton put him in the middle of a controversy over a pill, banned in the United States, that induces abortion. He said the United States had acted illegally when it seized pills containing mifepristone, sold under the name RU-486, from a pregnant woman who had bought them in France, where the drug was legal.
The Supreme Court reversed his decision. But the publicity the case generated was seen as helping to build support for the eventual approval of the drug in the United States in 2000.
Charles Proctor Sifton was born in Manhattan on March 18, 1935, and graduated from Harvard in 1957. He was a Fulbright scholar in Germany, and graduated from Columbia Law School.
He worked on the staff of the Senate Foreign Relations Committee and in the office of the United States attorney in Manhattan, where his last position was chief appellate lawyer. He then worked in private practice.
President Jimmy Carter appointed him a federal judge in 1977. Unlike many federal judges, he had never belonged to a political organization.
Judge Sifton’s marriage to Elisabeth Sifton, a prominent book editor and author and the daughter of the theologian Reinhold Niebuhr, ended in divorce.
Besides his son Sam, the restaurant critic of The New York Times, Judge Sifton is survived by his wife, the artist Susan Rowland; two other sons, Toby and John; and three grandchildren.

Saturday, October 24, 2009

R.I.P. Steve L. Jefferson


Steve Passed away August 30th of this year. He was only 38 years old. The news was shocking as I found out on my news feed in facebook. I froze for what seemed like forever. You know when 10 billion thoughts go through your mind I guess that means you brain is trying to process the information. I never personally knew Steve but I have exchanged messages with him  several times. I can tell you what I had admired about him most is that as bad as his condition was. He never felt sorry for himself and I never saw him complaining about his symptoms. That's a role model and a hero in my book. I want people to know that. I would love for all those that read this blog entry to go to his facebook tribute page and just write a message for Steve. Even if you don't know him. If you have sarcoidosis and are dealing with this disease or know someone who is dealing with it then you in a way you did know Steve Jefferson. All of us who dealt with not being able to breath, night sweats, Pain, and too many other to mention symptoms then You knew who Steve was.
Something really important if we are to advance medical treatment or just find out more about this disease through research in the medical community is the spreading of awareness. You have this disease and don't like to talk about it I suggest you do. I start off by Mentioning Bernie Mac because everyone knew who he was. Sometimes some of us look great on the outside and on the inside we feel like crap, well that's something worth mentioning too. Tell as many people as you can and do it because you want them to know this is out there not because you want them to feel bad for you. Wear your sarcky Shirt, your red Sarcoidosis bracelet and display the purple ribbon so people can see it. Steve always talked about spreading awareness, so for him I will do the best I can to do just that.

One of the reasons breast cancer cases are down in current times is because there has been so many advancements in early detection all thanks to awareness efforts.

If your the praying type then prayers are needed for the Jefferson family as they get through this tough time.

His wife Londonne is determined to pick up where Steve left off in spreading awareness. She is a strong woman who is going through a lot with her kids and her family. Let's show her she is not alone in this struggle and visit the facebook tribute page.

Wednesday, October 14, 2009

Mayweather's "Rare Lung Disease"


An article came out on Floyd Mayweather Sr and mentioned his "disease" sarcoidosis. I wish the article would have gone into it a little bit more but hey at least they spelled sarcoidosis correctly right?

I feel bad for Mayweather even though he probably wouldn't want anyone to feel bad for him. Especially since he can still whoop somebody's ass, mine included. I just hate for people to have to go through that period. I'm glad he's feeling better as per the article he is eating organic foods and is doing well but no mention of what medication he is on if any but the article does state that thet "his rare lung disease, sarcoidosis, is under control, ." Whatever that means...


I wish him well and hope he really does have it under control. I also hope he talks about it more because the more he does the more coverage and exposure this disease might get. 


Here is the article http://www.fighthype.com/pages/content5912.html



Thursday, October 8, 2009

Paranoid?

Well, I guess it's all in my head. My primary doctor and I got ahead of ourselves here. Swollen lymphnode in my neck + Coughing+ High ace levels= Nothing? After a lung scan and breathing tests my specialist in New York Dr. Alvin Tierstien said to me that I was still sarcoid free. He then asked if I'm really there because I miss him. Joking aside I still need to find out why I sound like I smoke 5 packs a day for 100 years. My voice is really hoarse and and it doesn't hurt. I gotta go back to my primary so she can explain the ace, the lymphnodes and everything else. I guess I'm just being paranoid?

Tuesday, October 6, 2009

86

Blood work came back and ace levels up to 86. Just as I suspected after finding a slightly enlarged lymph node. I thought it was gone and carried on as such, although it's not confirmed until I go into my pulmonary specialist to do x rays my coughing today tells me what's coming.

Sad yes, feel sorry for myself no, I know what I need to do now. 

I'll do it with the help of family and friends including some sarko's I met along the way.

hasta la proxima!

Note to self:
Do something about the high cholesterol while your at it.



Sunday, September 27, 2009

Circle of Sarc

When you go through some lengthy medical hardships like we do it become a 7th sense sort of to know your body's state of health. Sort of like a heightened state of health alertness if you will. We know our bodies and when we are sick when to take a double dose of preds, how far it will get us. In a way some of us know more than doctors. At least after 2 years of dealing with this disease that is how I feel. 

The last 2 weeks I have been feeling a bit out of norm. Short of breath a bit of fatigue and today I found a lump under my jawbone that feels like an enlarged lymphnode. I have had plenty of them that's how I know what they feel like.

It's a a bit scary to think after 8 months on the path to normal that this thing might be coming back. I went to my regular doctor and she found a a lump in my stomach, she attribute it to scaring from surgery. I asked her to check my ace levels as I knew something just didn't feel right.

What ever happens happens, I'm ready for whatever comes I just hope it's not too bad I'm really focused on work right now.

Cross your fingers for me and hope it's just all in my head

Saturday, September 5, 2009

7 months sarcoid free

It feels like longer than that but I'm still sarc free. October isn't a good month for me something always happens I know, I know, no negative thoughts. I feel great and I gotta say the experience has changed me forever. I really think twice before taking anything for granted! 

Even when I was at my worst this disease taught me to so much and I'll never forget it. I'll also never forget what I went through and how it feels what some of you go through right now. 

Sometimes I even think about getting a tattoo (no I don't have any) as a constant reminder of how things used to be. Reminding myself sort of keeps me in check, so I think about it from time to time. I wonder if this makes sense to anyone else?

Sarcoidosis United

Sarcoidosis United
Sarcoidosis United