The petition started I believe, with Keith and from there Sarcoidosis Awareness Society (SAS) was created.
The Big 3 responsible for this are Charlette Doggett, Martine Caitlan and Keith Bigland.
I take my hat off to these three as they are heros to the struggle. Their efforts in the UK have been tremendous!
Here is their page on Facebook where you can donate and see pictures of their historic trip to hand over the petition.
Sarcoidosis Awareness Society on facebook