Friday, January 23, 2009

Can your doctor do this?

Called my pulmonary specialist today to follow up with how I feel. I was getting home when he called me back and I realized that the other pulmonary specialist I went to when I couldn't see Dr. Tierstien had sent me a scribe to go get a ct scan. He recommended I get one every 6 months just like it says in all the text I have read about sarcoidosis. So Dr.T asked how I'm doing and my response was that I actually feel pretty good. My Lymph nodes are not running wild at the  moment although the ones on my face never went down to normal size. I have energy and my breathing is OK. I proceeded to tell him that it's time for my ct scan it's been 6 months. He's like what ct scan? I said, "ct scan to see how I'm doing". He then started to tell me how unnecessary it is to do a scan like that when all he needs is an x ray. Doing a ct scan is the equivalent of doing 30 x rays! 

I remember reading that most doctors can find sarcoidosis on an x ray because they are not looking for that. I also remember having x rays done in the hospital when I had my splenectomy and no one could tell my breathing problems were from all that cloudiness in the x rays. It just goes to show I really think I'm in good hands with Dr. T

Thursday, January 15, 2009

Lets all be invisible

OK, I remember watching the movie "The Fly" when I was a kid, I always thought about the possibility of breaking down every molecule of your body and transferring them in proper order from one pod to the other. I thought this might me possible one day. Well so far no word on that but they will have a "cloak of invisibility instead. If there is money and enough scientists out there to advance technology to the point where we become invisible then why cant we do something as simple as kill cells that are damaging other cells without killing the whole bunch. Or what about a safer way to control inflammation? Jeez I think I'm asking for too much here, what about the cure for the rhinovirus (common cold)? 

Common now...

Science closing in on cloak of invisibility

Wednesday, January 14, 2009

Lessons from Half Cat

This is an incredible story not only because it had me in tears but it teaches a great lesson for us sarckies. I'm not going to go into so I just posted the link to where TeeGee posted it. It's a must read I cant say no more!

Sunday, January 11, 2009

Got my Snarkie Sarckie shirt!

Here I am in my Snarkie Sarckie sarcoid Oh Crap! shirt. 

I want to thank The Gardener for making these shirts a reality. We had rubber bracelets and pins before which is great but this is a wonderful upgrade in our spreading awareness toolbox. 

Get yours here and be apart of this grassroots campaign  in the fight against sarcoidosis.

Sunday, January 4, 2009

Snarky Sarckie T shirts and Mugs by The Gardner

My man The Gardner from the FRS forums put together a collection of T shirts and mugs so that we can now express ourselves with humor!

My favorite one is Sarcoidosis rhymes with, I feel like crap.

Snarky Sarckie T shirts and Mugs by The Gardner

Sarcoidosis United

Sarcoidosis United
Sarcoidosis United