Monday, September 24, 2012
I never came across this till now but though I would share an article on Bernie speaking of sarcoidosis.
Posted by DRojo at 8:10 PM
Tuesday, April 17, 2012
The month of April was declared National Sarcoidosis Awareness Month by US Congress in 2008. Many organizations are observing this and it's a great month t participate in walks, garage sales and many other ways to raise funds for research.
Here is an article I read this morning about April being Sarcoid month and how Social Security does not yet lists sarcoidosis. http://www.beaumontenterprise.com/business/press-releases/article/April-Is-National-Sarcoidosis-Awareness-Month-3479935.php
Also please read this really great article on the Huffington Post
And lastly click on the Link to go the FSR site and find activities to participate in.
Posted by DRojo at 7:18 AM
Monday, April 16, 2012
I just received a pamphlet in the mail on the annual Autoimmune Walk for a Cure. There is one in NYC for those of us in the metro area. I'm wondering if anyone is interested putting together a team to walk this thing and raise money for this cause.
Although I no longer suffer from sarcoidosis I am forever linked to autoimmune diseases where ever I happen to look.
Let's start with my brother, he has suffered from ulcerative colitis almost his whole life. I have a cousin who suffers from chrons disease. My mother-in-law (RIP) suffered from chrons. My brother-in-law (RIP) also suffered from chrons and who know how many others I may not know about.
I believe this organization is the key because it's every disease united. That means more money for research. This is one of those find a cure for one you may have them for all. Even if science can find a way to control inflammation long term without shutting down your immune system and taking steroids then at least millions of people can live a little better.
Let me know if you live in the tri state area and are interested in walking and raising money for this worthy cause
Posted by DRojo at 9:02 PM