Wednesday, September 22, 2010

Jazz for a Cure

benefit for Sarcoidosis Research in Columbia, Maryland Featuring Alex Brown a Jazz musician unknown to me but that's not saying much. It's great to see this and I hope there is a good turnout for this very worthy fundraiser. Jazz may even be a good thing for those suffering from sarcoidosis and it's only 25 smakeroos. Come one come all Sunday Sept 26th  between 3 and 6pm. Check out the website of the hometownannapolis for more details!


I would love to hear from anyone who attends!

Tuesday, September 7, 2010

John Hopkins finds new lead that may bring us closer to a cure.

Or at least an official diagnosis...

I didn't see this article until TeeGee posted it on his Facebook I gotta say I have been out of the loop, my job has been keeping me real busy.

Many years of research finally yielded some info that might help doctors find sarcoidosis and diagnose it quicker. That's great news because as you know this disease often gets confused with others. They were able to ID a protein that might be responsible for triggering sarcoidosis. So far they know there is a link between this protein and sarcoidosis so one can say they will put them in the right direction. This took 6 years folks! It makes me feel good though, like someone "is on it".

Here is the article's link


Great find TG thanks!

Monday, September 6, 2010

Hike for Lung Health - Team Sarcoidosis

Unfortunately this is only going on in Chicago, but you can still help by doing a virtual hike and raise money for this cause. It seems like there is an increase in sarcoidosis awareness. Can we thank Bernie and Mayweather Jr.?  Either way, I'll take it! Awareness is good folks so do what you can here is the link to the FRS site with the Hike for Lung Health Team Sarcoidosis! If you don't feel like Hiking you can always send some money because in the end that's what it's all about. Money for research so please feel free to give them some.

Have a wonderful Labor Day!

Saturday, March 27, 2010

Appreciate the little things

I have written in the past about how much of the little things are appreciated as a result of things in your health sucking all the time. It's gives me great pleasure though to see others with sarc taking notes on the tiny little things that are good that for most people would just discard it as normal of even worst it just goes unnoticed. I guess it take a major disease or sickness or even scare to get people to realize how precious life is sometimes. All you have to do is take a minute and look around. Yeah things are bad your breathing is shit, you can't even breath through your nose, your tired and you wonder if you can even take another step. Bloated from all the drugs can't help feeling like your not even yourself anymore and you forgot what normal felt like. I guess that is what makes it easier to notice the tiny things that make us happy and why others don't even notice.

Sarcoidosis United

Sarcoidosis United
Sarcoidosis United