Called my pulmonary specialist today to follow up with how I feel. I was getting home when he called me back and I realized that the other pulmonary specialist I went to when I couldn't see Dr. Tierstien had sent me a scribe to go get a ct scan. He recommended I get one every 6 months just like it says in all the text I have read about sarcoidosis. So Dr.T asked how I'm doing and my response was that I actually feel pretty good. My Lymph nodes are not running wild at the moment although the ones on my face never went down to normal size. I have energy and my breathing is OK. I proceeded to tell him that it's time for my ct scan it's been 6 months. He's like what ct scan? I said, "ct scan to see how I'm doing". He then started to tell me how unnecessary it is to do a scan like that when all he needs is an x ray. Doing a ct scan is the equivalent of doing 30 x rays!
I remember reading that most doctors can find sarcoidosis on an x ray because they are not looking for that. I also remember having x rays done in the hospital when I had my splenectomy and no one could tell my breathing problems were from all that cloudiness in the x rays. It just goes to show I really think I'm in good hands with Dr. T