Friday, May 22, 2009

Life Sarcoid Free


It's been a long time since I knew what normal felt like. I give thanks to the man upstairs for letting me feel good again. Even when I was sick I had plenty to be thankful for though. I realize that this may be temporary, but I don't live in fear of this disease coming back. I'm just thankful for the things I have learned about myself, and for the outlook it gave me. I lost some of the prednisone weight but not all of it. I normally don't post pictures of me but here's one of me taking a paddle on the Delaware River. Something that when I was at my worst I thought I would never do again. 


2 comments:

J Marie said...

I really enjoyed reading your blog and it was quite helpful. Before I became sick I had lost 35 lbs. partly from trying and the rest from pneumonia and a hacking cough which left me exhausted and not eating for several months. Something good out of something, huh. But after several months finally had to have more xrays, CT scan and finally a bronchospy and lo . . . scarcoidosis! The more I read the worse I felt, of course. Finally decided additional stress no good for me, you can only change some things and the rest you move forward and adjust. The diagnosis also explained other things that had been going on. I am on prednisone and it is helping except the weight is coming back on. Sometimes I don't sleep well, but I'll handle it. There could be worse things like cancer or losing people in my life that are important. It really puts the priorities in their place even though I've always tried to live each day as if it were my last influencing others in a positive way if I can. Your blog was a real encouragement to see someone doing better and moving forward. Thanks for taking the time to share your life and your struggle. That's not easy to do for a lot of people. I appreciate it so very much. I work as a church secretary and also help to raise my grandchildren who are in the office with me during the day. They bring so much laughter. My coworkers are great on those off days. May God walk beside you and keep you well. You are a blessing to so many.

Judith

Sarcoidosis Untied said...

Judith, Thanks for such kind words, I always thought that so many of our diagnoses being so different yet we can still relate to each other in such a way it's comforting to know that we're not alone.

Take care!

Sarcoidosis United

Sarcoidosis United
Sarcoidosis United