Monday, September 24, 2012

Bernie Mac Speaking about Sarcoidosis in a Radio Interview 2009

I never came across this till now but though I would share an article on Bernie speaking of sarcoidosis.


Bernie Mac Speaks Candidly About Sarcoidosis

"What do Floyd Mayweather Sr., Tisha Campbell-Martin, Evander Holyfield, Bill Russell and Angie Stone have in common? They are all victims of Sarcoidosis.
Bernie McCain addresses a disease that effects many in the African American community but is little discussed. Sarcoidosis is a disease due to inflammation. The disease is characterized by the presence of granulomas, small areas of inflamed cells. They can be either inside the body or on the body’s exterior, appearing as sores on the face or shins. This afternoon at 5 pm, Bernie will have in studio Kim Carrie Grant to talk about how she deals with Sarcoidosis and on our News Line, Dr. Gavin Henry of St. Agnes Hospital in Baltimore".
Not the biggest or best article out there but the writer made a great attempt to spread awareness. Unfortunately it's not done enough. 

Tuesday, April 17, 2012

April is National Sarcoidosis Awareness Month




The month of April was declared National Sarcoidosis Awareness Month by US Congress in 2008. Many organizations are observing this and it's a great month t participate in walks, garage sales and many other ways to raise funds for research. 


Here is an article I read this morning about April being Sarcoid month and how Social Security does not yet lists sarcoidosis. http://www.beaumontenterprise.com/business/press-releases/article/April-Is-National-Sarcoidosis-Awareness-Month-3479935.php

Also please read this really great article on the Huffington Post

Making a Difference: The World of Giving -- Sarcoidosis Awareness Month


And lastly click on the Link to go the FSR site and find activities to participate in. 


Monday, April 16, 2012

Autoimmune Walk for a Cure



I just received a pamphlet in the mail on the annual Autoimmune Walk for a Cure. There is one in NYC for those of us in the metro area. I'm wondering if anyone is interested putting together a team to walk this thing and raise money for this cause.

Although I no longer suffer from sarcoidosis I am forever linked to autoimmune diseases where ever I happen to look.

Let's start with my brother, he has suffered from ulcerative colitis almost his whole life. I have a cousin who suffers from chrons disease. My mother-in-law (RIP) suffered from chrons. My brother-in-law (RIP) also suffered from chrons and who know how many others I may not know about.

I believe this organization is the key because it's every disease united. That means more money for research. This is one of those find a cure for one you may have them for all. Even if science can find a way to control inflammation long term without shutting down your immune system and taking steroids then at least millions of people can live a little better.

Let me know if you live in the tri state area and are interested in walking and raising money for this worthy cause

/http://www.autoimmunewalk.org/

http://www.facebook.com/AutoimmuneWalk

Sarcoidosis United

Sarcoidosis United
Sarcoidosis United